Welcome to

CARE COLLECTIVE


A health care team is an interwoven, multidisciplinary collaboration of trained clinicians and specialists, working together to provide you with quality patient care.



As a

PATIENT


Life with thyroid eye disease (TED) can be stressful and unnerving, but your care team is dedicated to helping you fight back.
Meet Your

OPHTHALMOLOGIST


#Click# the next arrow to learn how your ophthalmologist can help you fight TED.
Meet Your

OPHTHALMOLOGIST


A doctor who specializes in diagnosis and treatment of diseases and disorders that affect the eyes.

Defining the Role


Learn more about your ophthalmologist.
Defining

The Role


An ophthalmologist is trained to:

  • Look for changes in TED
  • Monitor disease progression
  • Help manage symptoms
Meet Your

OPHTHALMOLOGIST


A doctor who specializes in diagnosis and treatment of diseases and disorders that affect the eyes.

Finding the
Right Ophthalmologist


Choose an ophthalmologist that fits your life.
Finding the

Right Ophthalmologist

For Your Needs


Some ophthalmologists focus on TED instead of other eye diseases and disorders, and are likely to have more experience with the condition.

For Your Lifestyle


Find an ophthalmologist close enough that travel costs, symptoms, and time constraints won’t hold you back from regular checkups.
Meet Your

OPHTHALMOLOGIST


A doctor who specializes in diagnosis and treatment of diseases and disorders that affect the eyes.
You will likely meet other care team members on your journey with TED. #Click# the next arrow to learn more.
Meet Your

TED SPECIALIST

#Click# the next arrow to learn how your TED specialist can help you fight TED.
Meet Your

TED SPECIALIST


A type of ophthalmologist with extensive training and knowledge in evaluation, diagnosis, and treatment of TED.

Defining the Role


Learn more about your TED specialist.
Defining

The Role


A TED specialist is trained to:

  • Perform comprehensive eye exams
  • Order and interpret advanced testing for TED
  • Promptly treat difficult and serious TED symptoms
Meet Your

TED SPECIALIST


A type of ophthalmologist with extensive training and knowledge in evaluation, diagnosis, and treatment of TED.

Managing Symptoms


TED symptoms that may be treated by a TED specialist.

Managing Symptoms

Dry, gritty, irritated, 
or watery eyes 

·············️

Eye pain, pressure, 
or sensitivity 
to light 

·················️

Blurry or 
double vision 

············️

Vision loss, 
including color vision 

················️

Swollen, puffy, 
or retracted eyelids 

···············️

Bulging eyes 

······················️
Meet Your

TED SPECIALIST


A type of ophthalmologist with extensive training and knowledge in evaluation, diagnosis, and treatment of TED.
You will likely meet other care team members on your journey with TED. #Click# the next arrow to learn more.
Meet Your

OPTOMETRIST

#Click# the next arrow to learn how your optometrist can help you fight TED.
Meet Your

OPTOMETRIST


A health care professional trained to assess and diagnose eye conditions and abnormalities, treat common vision problems, and prescribe medications for eye diseases.

Defining the Role


Learn more about your optometrist.
Defining

The Role


An optometrist is trained to:

  • Provide primary vision care
  • Perform eye exams and vision tests
  • Work with your TED specialist to manage the disease
Meet Your

OPTOMETRIST


A health care professional trained to assess and diagnose eye conditions and abnormalities, treat common vision problems, and prescribe medications for eye diseases.

Not All Eye Doctors are the Same


Similarities and differences between eye professionals that you may meet.
Not All Eye Doctors are

the Same

What about opticians?


While an optometrist and an optician can both find fitted solutions for correcting vision, an optometrist can also perform eye exams, diagnose eye diseases, and write prescriptions.
01

What about ophthalmologists?


For routine eye care, check in with your optometrist who can help you prevent basic eye diseases and conditions. For more advanced treatments or surgery, visit an ophthalmologist.
02
Meet Your

OPTOMETRIST


A health care professional trained to assess and diagnose eye conditions and abnormalities, treat common vision problems, and prescribe medications for eye diseases.
You will likely meet other care team members on your journey with TED. #Click# the next arrow to learn more.
Meet Your

PSYCHOLOGIST

#Click# the next arrow to learn how your psychologist can help you fight TED.
Meet Your

PSYCHOLOGIST


A mental health professional that specializes in the study of the mind and how it affects behavioral, emotional, and cognitive processes.

Defining the Role


Learn more about your psychologist.
Defining

The Role


A psychologist is trained to:

  • Help patients cope more effectively with life’s challenges
  • Assess and evaluate emotional and psychological concerns
  • Provide behavioral therapy and treatment for mental health impacts of TED
Meet Your

PSYCHOLOGIST


A mental health professional that specializes in the study of the mind and how it affects behavioral, emotional, and cognitive processes.

Building Trust


Tips on building a strong relationship with your psychologist.
Building

Trust

Be yourself 

··························️
Life with TED isn’t easy, but the more honest and truthful you are with your psychologist about everyday struggles and hurdles, the more benefit you will get from therapy.

Define your goals 

·················️
Set aside some time every session to discuss your quality of life, overall emotional wellbeing, and any other TED-related concerns you may have.
Meet Your

PSYCHOLOGIST


A mental health professional that specializes in the study of the mind and how it affects behavioral, emotional, and cognitive processes.
You will likely meet other care team members on your journey with TED. #Click# the next arrow to learn more.
Meet Your

PRIMARY CARE PHYSICIAN

#Click# the next arrow to learn how your primary care physician can help you fight TED.
Meet Your

PRIMARY CARE PHYSICIAN


A first-point-of-contact clinician who provides definitive, preventive care and can diagnose and treat a broad array of conditions.

Defining the Role


Learn more about primary care physician.
Defining

The Role


A primary care physician is trained to:

  • Order and interpret initial blood work results
  • Refer patients to specialists
  • Work with specialists to help manage TED-related symptoms
Meet Your

PRIMARY CARE PHYSICIAN


A first-point-of-contact clinician who provides definitive, preventive care and can diagnose and treat a broad array of conditions.

Referring You
to a Specialist


Your primary care physician may refer you to other doctors for further evaluation.

Referring You

to a Specialist

Your primary care physician


will likely refer you to an ophthalmologist or a TED specialist, who are trained and knowledgeable in diagnosing and treating eye diseases, like TED.
Meet Your

PRIMARY CARE PHYSICIAN


A first-point-of-contact clinician who provides definitive, preventive care and can diagnose and treat a broad array of conditions.
You will likely meet other care team members on your journey with TED. #Click# the next arrow to learn more.
Meet Your

ENDOCRINOLOGIST

#Click# the next arrow to learn how your endocrinologist can help you fight TED.
Meet Your

ENDOCRINOLOGIST


A doctor who specializes in the diagnosis and treatment of hormone- and gland-related diseases.

Defining the Role


Learn more about your endocrinologist.
Defining

The Role


An endocrinologist is trained to:

  • Treat conditions that can lead to TED
  • Help create individualized treatment plans
  • Educate patients on importance of managing hormone-related disorders
Meet Your

ENDOCRINOLOGIST


A doctor who specializes in the diagnosis and treatment of hormone- and gland-related diseases.

The Roots
of TED


Understanding the “whys” of TED.
The Roots

of TED


The Overactive Thyroid


Most people who develop TED have Graves’ disease, a type of hyperthyroidism where the thyroid gland (located at the front of the neck) produces more hormones than your body needs.

The Angry Immune System


Graves’ disease and TED are both autoimmune conditions, where a misdirected and confused immune system targets and damages the thyroid gland and the eyes, respectively.
Meet Your

ENDOCRINOLOGIST


A doctor who specializes in the diagnosis and treatment of hormone- and gland-related diseases.
You will likely meet other care team members on your journey with TED. #Click# the next arrow to learn more.
Meet Your

CAREGIVER

#Click# the next arrow to learn how your caregiver can help you fight TED.
Meet Your

CAREGIVER


Anyone (but usually a partner, spouse, parent, or adult child) who takes care of another person or helps that person take care of themselves.

Defining the Role


Learn more about your caregiver.
Defining

The Role


A caregiver can:

  • Help with daily, routine activities
  • Provide emotional and symptomatic support
  • Act as an advocate during routine or emergency doctor visits
Meet Your

CAREGIVER


Anyone (but usually a partner, spouse, parent, or adult child) who takes care of another person or helps that person take care of themselves.
You will likely meet other care team members on your journey with TED. #Click# the next arrow to learn more.
Meet

OTHER PEOPLE WITH TED

#Click# the next arrow to learn how other people with TED can help you fight the disease.
Meet

OTHER PEOPLE WITH TED


People with TED understand the challenges and obstacles of the disease, and while they may not be trained disease specialists, they are experts in living life with TED.

Words of
Encouragement


Inspirational insights from people living with TED.
Words of

Encouragement

“I cannot recommend support groups enough. There’s no better feeling than knowing that someone understands exactly what I’m going through with TED.”

“For a time, TED robbed me of my confidence. I stopped living my best life. A friend recommended talk therapy. Now, I control TED, not the other way around.”

“Before being diagnosed with TED, I didn’t know there were eye doctors who specialize in TED. Knowing my doctor is an expert in the disease reassures me that I’m in great hands.”

Meet

OTHER PEOPLE WITH TED


People with TED understand the challenges and obstacles of the disease, and while they may not be trained disease specialists, they are experts in living life with TED.

Your
health care experience

is shaped by the team members you meet along the way. #Click# the next arrow to revisit the care team members you just met.



For more information on a specific care team member, select a chapter below to download & print.